Spirit Unforgettable – Available Now

Over the past 2 weeks we’ve participated in film screenings across the Waterloo and Wellington Regions, watching a wonderful film and spreading awareness about Alzheimer’s Disease.

Spirit Unforgettable looks at lead singer of Spirit Of The West, John Mann, after his diagnosis at age 50. Through interviews with John’s family, friends, and John himself, the film shares a view on what life is like after diagnosis – sometimes funny, sometimes sad – but always important. (Watch the trailer here: http://ow.ly/w10l3069rz1)

Now, you have the chance to view the film too, available on iTunes. Click this link for more information on the film, and to purchase! http://ow.ly/9t1C3069pJ1

With the help of our community and generous donors, we can continue to help provide services to individuals like John, his family and his friends.

Click below to visit our website for more information on what we do, and how you can help individuals with Alzheimer’s and other dementias live their best day.



University of Waterloo Researchers Recruiting People Living with Dementia for Advisory Committee

Researchers at the University of Waterloo are setting up an advisory committee with representation from people living with mild to moderate symptoms of dementia, researchers and entrepreneurs/ICT developers.

They would like to invite you to consider participating in an advisory committee group for a research study that we are conducting to explore how entrepreneurs can engage people with dementia meaningfully and respectfully in the design, testing, and commercialization of information communication technologies (ICTs) intended for their use, and to create practical resources for entrepreneurs and people living with dementia looking to collaborate on technology projects. This research study is being conducted by Dr. Mark Oremus and Lisa Loiselle, University of Waterloo, in partnership with Emmetros Limited and the Ontario Dementia Advisory Group (ODAG).

For more information, see the attached documents.information-letter-for-advisory-group_ore     participant-information-sheet

Ryerson University Requests Study Participants Aged 13 – 18

As a result of an aging population and an increase in the number of people having children at an older age, adolescents are more often becoming caregivers of, or having a relationship with, a relative who is living with dementia. There is a gap in knowledge that currently exists related to this phenomenon from a Canadian context. As such, Ryerson University researchers are conducting a qualitative study to better understand adolescents’ experiences as young carers of older relatives living with Dementia or Alzheimer’s disease. The results from this study will be used to increase awareness and inform nursing practices that may be most effective in working with and supporting adolescents.

The study will invite individuals to participate in an interview in-person, on Skype or by phone. An experienced research assistant will conduct interviews and should you agree to participate, they will be arranged at a time convenient for you. Each interview is expected to last for approximately 45-60 minutes. This study has been approved by Ryerson University’s Research Ethics Board.

If you are interested in participating in this study, please click the link below for more information, and contact the researchers directly.


First-ever Alzheimer Society Action Summit gives Ontarians with disease a voice in policy change

TORONTO, Sept. 28, 2016 /CNW/ – On September 29 and 30, the Alzheimer Society of Ontario will host its first-ever Alzheimer Society Action Summit for Ontarians living with dementia, care partners and advocates to have their say in how to influence government policy. This two-day symposium comes on the heels of the release of the Ministry of Health and Long-Term Care’sDeveloping Ontario’s Dementia Strategy: A Discussion Paper.

The Action Summit will cover a range of topics, from identifying research priorities, to increasing community support and building the capacity of the dementia workforce.  Ian Parker of the Centre for Independent Living will kick off the summit Thursday evening. The keynote will focus on his influential work as an advocate and person living with a disability, and offer practical advice on how we can all influence the change we want to see.

While this summit is the first of its kind in Ontario, it is part of a growing worldwide movement of people with dementia who are advocating for political change and standing up for their needs and rights.  Since 2014, the Ontario Dementia Advisory Group has been leading the charge in the province, making sure its members’ voices are heard and integrated into key policy discussions. Internationally, the Dementia Advocacy and Support Network International (DASNI) has emerged as an influential voice on the political stage, advocating for the recognition of dementia as a disability in light of the United Nations 2006 Convention on the Rights of Persons with Disabilities (CPRD).

Swift political action towards a provincial dementia strategy is needed. Today, there are over 200,000 Ontarians living with dementia and this number is expected to increase by 15 per cent in just four years.

The Alzheimer Society invites all those impacted by dementia to be part of the Action Summit by visiting www.actionfordementia.ca

SOURCE Alzheimer Society of Ontario

For further information: Media contact: Rosanne Meandro, Director of Communications, rmeandro@alzheimer.ca, Direct: 416-847-8920, Cell: 416-669-5715

Alzheimer Society of Ontario applauds new discussion paper

One step closer to an Ontario Dementia Strategy

TORONTO, Sept. 21, 2016 /CNW/ – The Alzheimer Society of Ontario welcomes Developing Ontario’s Dementia Strategy: A Discussion Paper, released today on World Alzheimer’s Day. By facilitating an open conversation, the new discussion paper is a critical step towards developing and implementing a comprehensive strategy to address the needs of Ontarians affected by dementia.

“Virtually all Ontarians will be touched by dementia in some way – our families, our workplaces and our communities. We need to work individually and as a collective group to build a province that respects and supports the needs of people with dementia so they can live as well as possible, and where their care partners are supported,” says Chris Dennis, CEO at the Alzheimer Society of Ontario.

Ontario now joins a number of jurisdictions around the world that have acknowledged the importance of dementia as a critical health and social issue.

In the coming weeks and months, the Alzheimer Society of Ontario and its 30 local Society partners across the province will work with the Ministry of Health and Long-Term Care to ensure that people with dementia and their care partners have their say in this important consultation process.

On September 29 and 30, the Alzheimer Society will be hosting Ontario’s first provincial conference with people living with dementia and care partners, providing them an opportunity to discuss how to influence government policy on dementia and advocate for change that will make a lasting difference in the lives of all Ontarians affected by this disease. Stay tuned to the Alzheimer Society ofOntario social media channels as more details are released about this important event.

To learn more and stay up to date on progress towards an Ontario Dementia Strategy, visit www.ontariodementiastrategy.ca.

SOURCE Alzheimer Society of Ontario

For further information: Media contact: Rosanne Meandro, Director of Communications, Direct: 416-847-8920, rmeandro@alzheimer.ca